Sunday, August 03, 2014

Back to School Fun and the Botox Blues

Warm muffins are resting on the counter.
Backpacks are ready to go.
Uniforms are ironed.
Two not so little boys are having a hard time sleeping tonight. They are beyond excited about embarking on this new middle school journey bright and early ... and I do mean early ... in the morning.
I am still baffled at where the time went and how these young men grew so quickly but I am so very proud of them.
Max is stoked about Creative Dramatics, which is a film/video class, totally appropriate.
Porter is thrilled to meet new CLUE kids (talented and gifted class) AND he is in orchestra with his favorite strings teacher!
Aside from the fact that I am nervous and emotionally drained, I LOVE the first day of school. Just the thought of it brings to my senses, the smell of new pencils, the feel of new clothes and that unmistakable feeling of fear mixed with excitement. A fresh new start ... I LOVE it!
For these boys, I really believe it is going to be a great year.

Now, onto the big boy.
The last Botox injection (to treat his Palatal Myoclonus) lasted a blissful 6 weeks, not the anticipated 3 months.
We got great news that we could stay closer to home as there is actually a doc that does these palate injections in Memphis!!
We wait the month and a half for the appointment only to find not only that the doc isn't in our plan, the precertification never happened.
Lots of phone calls to doctors offices and insurance reps, another 6 weeks and finally ... Joel got the injections on Monday. Woo hoo!!!
The relief wasn't as immediate as the last time around, but the popping seemed to taper off to a comfortable level within a few days. And we thought he was really on the way to feeling great.
And then... he started noticing difficulty drinking ... liquids tend to go 'up' before going down ... drinks coming out of his nose is a cool party trick but not desirable :-/  And then he started to notice a bit of a speech impediment. The more he talks, the worse it gets and it frustrates him to NO end.

These are all side effects we knew we could face, we even saw videos of people with the 'dysphasia' and knew that this could be part of the future but I guess because the first one was met with zero downside with the exception of the short lived-ness ... we expected smooth sailing.

The upside - it's not a forever thing. This should only last a week or so. Fingers crossed.

It's just a bump. We are so blessed that we have healthy kiddos and while this is a miserable disorder, it could be SO much worse. But at the moment it is crazy frustrating and not great for that boy's mood ... or patience.

So... for those of you who speak to him daily, No, he hasn't been drinking ... the slurred speech just means that the Botox is doing it's thing. And if you have a moment, send him a word of encouragement or two ... he could use them :-)

Standby for first day pics!!