Wednesday, September 18, 2013

Blown Away... Joel's Weird Diagnosis Update

So that boy I married isn't much for believing in prayer. But as for me, I am pretty sure that God payed attention to all of your prayers, well wishes and good thoughts. No... the popping hasn't gone away ... but we may be a lot closer to treatment!

We visited this great place called Memphis Chiropractic Neurology  and Dr. Bibb had already begun researching Palatal Myoclonus. While amazing us with a few really interesting tests that showed obvious neurologic deficits (no jokes about how he's wired wrong :-) and exercises that seem to reroute the signals, making stuff work right (yup, technical terminology) ... he also let us know that he has a colleague HERE IN MEMPHIS who studied under the ONLY person in the country it seems with an answer to this uber rare disorder, Dr. John Lieurance - who has developed a method called functional cranial release. Joel's family was ready to take him to Florida for this when we heard this news. In fact I'd already scheduled a tentative set of 4 treatments. The very next morning, I called and left a message for doctor #3 in this crazy trifecta of medical assistance, Dr. Goode. In no time at all I got a call back from the doc himself who tells me that not only has he been in contact with both doctors, they will all work together to treat Joel! I nearly fell to pieces in the breakroom at work.

Every now and then humanity surprises me. Three doctors, three separate practices but they will come together to take on this monster that has stolen Joel's sanity.

Ready to find his smile again!
It's not a final solution and we don't know if it will work but it feels like the only thing that makes sense and has a chance of making the hideous popping stop. We start this tomorrow night ... the treatment will include endo-nasal ballons and various other methods used to open up neural pathways and oxygenate the brain. All in an effort to STOP THE POP! Let's do this people!!